Hello Family and Friends,
Sorry that you have been waiting all day to hear from us. We spoke with the Cardio lady around 10am. According to the X-ray the balloon only helped a little, but won't be enough. I don't think that they did ever talked to Dr. Ohye today-his name wasn't mentioned. But they will be scheduling another surgery in 4-6 weeks. We were released from the hospital and headed home.
We were certainly hoping that we wouldn't have to be doing this for at least a couple years, but the universe has different plans for Max. We did see a couple of families that were there the first time so at least we have been home for the past couple of months with our little guy.
We stopped and picked up Grandma P. in Ionia and got home about 12:30 pm. Grandma took care of Max while John and I slept. Any of you that know me know that I need my sleep to function. The total hour of sleep i got last night just doesn't allow me to function in the least!!
Anyway, back to Max. They will have to completely replace the conduit and repair his artery at the connection. We asked about the Truncal Valve being repaired a the same time and she didn't know anything about that. I'm curious to actually hear Dr. Ohye's plans. The surgery will entail opening Max's chest all the way open again! I was really hoping that somehow they wouldn't have to do that-no such luck ):. Literature I read said the healing process should be quicker with each surgery but I think that was assuming he would be closer to 2yrs of age. I am not looking forward to any of it that is for sure!! Especially after I stay last night.
This is where we are right now. It totally sucks but we have to get Max better as soon as we can. The whole situation is so disappointing. Max has been doing so well and gaining weight steadily. He wasn't having any kind of symptoms what so ever.
I know I haven't ever posted on the blog-I just get too emotional and overwhelmed whenever i read it. I want to thank everyone for all your prayers for Max. they certainaly have worked to help pull him through all this!! We love everyone very much and couldn't have made it through all of this without your support.
I have to start back to work next week so I will spend the rest of the week holding my baby close to me!!!